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Kentucky woman loses arms, legs after kidney stone infection - The Washington Post

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Lucinda Mullins lay on her Kentucky home’s bathroom floor last month in excruciating pain from a kidney stone. She was vomiting and had developed a fever and back pain, so she yelled for her husband, DJ, to help.

Mullins went to a hospital. Weeks later, she would be a quadruple amputee.

Her kidney stone had become infected and caused sepsis, the immune system’s extreme attempt to fight an infection, which can cause organ failure and death. Doctors gave Mullins medication that sent all her blood flowing to her organs — and restricted it from her less vital arteries in her legs and arms.

After more than a week of treatment, doctors told Mullins that her key organs were healthy. But there was another problem: The tissue in her legs and forearms had died and parts of the limbs needed to be amputated.

“If that was the sacrifice that I had to make to be alive,” Mullins, 41, told The Washington Post, “I was okay with it.”

Mullins’s legs were amputated from above her knees last month, and she began physical therapy on Tuesday to prepare for prostheses. She said everything below her elbows will be amputated near the end of January.

Doctors “give you that rare chance of something bad happening … but I would have never dreamed [of this],” Mullins said.

Mehdi Shishehbor, the president of an Ohio hospital’s heart and vascular institute, said that kidney stone infections rarely lead to amputations. Some patients are treated and cured of sepsis — which can result from many illnesses and infections — with antibiotics, he said.

However, Shishehbor said that amputations are a better outcome than many of his sepsis patients experience. Nearly 270,000 people in the United States die of sepsis annually, according to the National Institutes of Health.

“Saving the life is more important than losing a limb,” Shishehbor said, “even though nobody wants to lose a limb.”

Mullins said she was diagnosed with kidney stones just over a year ago.

A urologist removed a stone in her left kidney in October, but the stone in her right kidney didn’t require immediate surgery, Mullins said. The urologist gave her a stent, a small plastic tube that helps urine move from the kidney to the bladder, in hopes of making it easier to eventually remove the stone, Mullins said.

After she took out the stent a few days later, Mullins said she felt sick. DJ drove her to Ephraim McDowell Fort Logan Hospital in Stanford, Ky., where Mullins answered doctors’ questions before she started to feel lightheaded — a sepsis symptom.

Mullins’s blood pressure was low, and a CT scan showed that her kidney stone was infected and her organs were failing. A few hours later, she was taken by ambulance to a UK HealthCare hospital in Lexington, Ky.

Doctors there placed Mullins on a ventilator and gave her dialysis, which removes excess water and toxins from blood when the kidneys are not working. Mullins was sedated for about a week while doctors treated her and tried to save her legs with an unsuccessful fasciotomy — a procedure to restore blood flow to dying tissue. Mullins doesn’t remember much from that week, but she said her family members — who made T-shirts that said #LucindaStrong — were scared she was going to die.

On Dec. 18, Mullins was lying in her bed when she asked a doctor to not sugarcoat her situation. He said that she needed amputations but would live.

On Dec. 19, Mullins went into surgery and awoke about five hours later without legs. The following day, Mullins said she cried when she saw her sons — 12-year-old Teegan and 7-year-old Easton — for the first time in nearly two weeks.

Mullins said she’s typically independent, but for a few days after surgery, DJ carried her around the hospital and fed her. Her twin sister, Luci, helped Mullins bathe in what they called “spa day.” Easton brushed his mom’s hair and applied her lip balm. She soon learned to use a wheelchair.

About a week after her amputation, Mullins said she went into surgery to remove the kidney stone. She feared something would go wrong, causing more health problems, but the procedure went smoothly. She and DJ couldn’t believe such a small mass had created so many problems.

On Monday, Mullins was transferred to Cardinal Hill Rehabilitation Hospital in Lexington. She’s strengthening her core, practicing moving from her bed to her wheelchair and stretching what remains of her legs and arms. Her hands, which she said “shriveled up” after the blood flow never returned, will be amputated later this month.

In about four months, Mullins said she plans to add prostheses for her upper and lower body. She hopes to eventually return as a nurse at an OB/GYN practice in Stanford.

Mullins’s friend created an online fundraiser to help pay for an elevator, a walk-in shower and other renovations for Mullins’s house. She’s scheduled for more surgeries and rehab over the next few months, but she said she’s looking forward to eventually returning home and seeing her sons every day.

“[I’ve learned] not to take my time or my family or my friends or anything for granted,” Mullins said.

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